I am so so sorry to share that our Baby Reid has passed away today.  Suddenly, without warning, and without pain or distress (on his part).

While we were able to personally contact many friends and family members, there’s just no way to inform all of you whom have been impacted by his life.

As we firm up details, we will share them here.  We are tentatively thinking of a short viewing on Saturday the 26th at 11am.

img_4191I am glad that despite all of the ’stuff’ and therapy, I have img_4175been able to live in the moment with Reid.  I have watched as he increased his meaningful interactions, and just yesterday commented not only on these but also on the increase in his smiles.  Reid has been a very happy child.  A very patient child.  When he was feeling well.  (Reflux and gas aside.)  He participated in most therapy sessions without complaint and didn’t img_4162even mind the helmet or braces that we asked him to wear.  He allowed his sisters to hold him, and enjoyed watching them in awe and entertainment.

I’m not sure of my own role in this world anymore.  Going from 2-3 doctor appointments and 7 therapy appointments a week, to nothing.  (Ok, so I still have 2 wonderful girls who will require shuttling.)  There are places that I don’t know if I’ll ever feel comfortable returning to without him…  Despite my groans, my arms feel empty.  And there are no longer breathing patterns for me to strain to hear.

The girls are exhausted, having ridden in a Fire Chief’s car, saying good-bye to Baby Reid in the hospital, and then having experienced the generosity of family-friends.img_4410

We appreciate all of the love, support, and assistance that has been offered.  And please know that when we actually are aware of a need… we will ask.  Problem is, I’m currently wading in wishy washy territory – unsure of my wants and needs from moment to moment.

Reid – I love you.  I will miss you terribly.  I’m sorry for all of the work that you’ve had to endure.  And I appreciate your awareness of being loved, through your smiles and your efforts to play.

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